Open Stigma

I can bet my lunch money most people in the DOC know¬† about what transpired this week, when CrossFit decided to tweet a gem of an image depicting a bottle of Coca-Cola with the words “Open Diabetes” next to it. First responders got so offended by the fact that they didn’t differentiate between types of diabetes, they played their type 1 card. After all, we type 2s are the ones that should blame ourselves, we are guilty as charged for our type 2 diabetes; type 1s, on the other hand, get a free pass. People cried so hard, CrossFit apologized… or tried to… and made things even worse by adding to the stigma we have to face every day. I’m not on twitter anymore, but I could see that CrossFit has now decided to play the diabetes paladin, and is sharing all kinds of misinformation about type 2 diabetes, but that’s a story for another day. But the problem is not CrossFit. The problem is us.

I could say I’m outraged, but I’m not. I could say I’m sad, but I’m not. I could say I’m full of negative feelings, but I’m not. I’m just tired… I give up, or at least I feel like giving up. I’ve been part of the Diabetes Online Community for 8 years. I’ve participated in conferences, meetings, committees, etc. I have tried to come up with an idea to make T2s more visible in the community. I have taken time off from the madness to regroup. A while ago I decided to move from the advocate role to the patient role because I couldn’t, in all honesty, advocate for anyone if I was doing so poorly with my diabetes treatment. But I’m still an advocate in many ways; for myself, for my close friends who have to live with type 2 diabetes.

But the Diabetes Online Community is just what it is. A battle of types; the constant debate of who’s more worthy of attention, the have’s and the have not’s, the auto-immune vs. the lazy, fat ones. And I just had it today. I’m not entirely convinced that some people affected by T1 diabetes really grasp the fact that the struggle is very similar for T2s regardless of how it happened. That’s why I decided to choose my battles wisely. I will participate in anything that will help me, but I will refrain from participation if I don’t feel included. I will concentrate on my own care and be my own advocate. I can’t advocate for people who stigmatize me or any of my fellow T2s, and I don’t think I should get in any kind of argument to justify my needs as a patient.

We need care and access no matter what. What difference does it make what type it is, if at the end of the day the risks and complications are the same? But for type 2s, in addition to everything we have to deal with, there’s also the shaming and the stigmatizing. It’s like you get beat up every time you ask for help. In the end, I am the one responsible for my diabetes. I can’t expect people who lack compassion to do anything about it or understand how I deal with it.

But I’m not giving up, or removing myself from the equation. I’ll stick with my fellow T2s, even if it’s just to share what we feel and give each other support. I’m also sticking with them because I’m not a perfect patient, and I’m fat… and sometimes lazy, but my diabetes is caused by so many other things. And that should be my priority, take care of myself; not trying to convince others that I deserve compassion, too.

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7 thoughts on “Open Stigma

  1. I agree. I am T1 but I don’t know why one type has to be “worse” than the other. Diabetes sucks, no matter what circumstances.

  2. Hello, During the 42 years I’ve been a type one, the doctors and nurses I’ve dealt with had a belief, proven in 1997, that type two could be prevented. How: Exercising at a low to moderate pace 30 minutes daily 5-7 days a week; eating nourishing food 90 percent of the time. This not only prevents type two diabetes but it is an effective treatment component for both types of diabetes. In 1983, the Diabetic Exchange Diet quantified moderation as 5 measured portions of high fat and/ or sugar foods per week. The high fat starch list included with the 1983 update broke my heart, but I loved that “foods to avoid” had a place for us as long as we knew what we were doing. My current understanding on type two diabetes is that it has many causes, can be put in remission (by following the above instructions) until you are elderly, cured by some type of gastric surgery, that once a person no longer needs medications (by following the above instructions) , their risk of complications is nearly zero, and that because the above instructions ( one compound sentence) do not make any one corporation or medical specialty any money, it is rare that anyone hears how simple it can be to sum up what works for most people with both types of diabetes.

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