We, the Undersigned

D-Blog Week 2013 – Day 2: Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate). What are you trying to change and what have you experienced that makes you want this change?

My petition would be for schools, work places and the like to be fair and understanding about people with chronic diseases with diabetes. I can’t believe the amount of crap I read about people being treated unfairly at their work, or not being given the considerations they need at school. This year has brought more personal stories from friends and family who are either afraid to disclose information or who feel they don’t have the same opportunities.

I recently read a story about a girl who couldn’t make it to a school trip because, I quote, ” the school isn’t insured and also they can’t touch the girl if she has a hypoglycemic attack. All they can do is give her painkillers and a plaster.” Today I read another story about a child who can’t get admitted into a school because he has diabetes. I could go on and on about this kind of stupid situation.

Are we really just going to sit and see this happen, or are we going to demand educational institutions to get their staff trained and ready to comply with the needs of children with diabetes? Diabetes happens, it happens a lot, there is no cure, you better get with the program.

As for work places, I really don’t want to say much, but in my personal experience it isn’t nice to tell your superiors your blood sugar is low and having them treat it like you just need to sneeze. We need more education, and as patients we need to be firm… really firm.

Share and Don’t Share

D-Blog Week 2013 – Day 1: Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one’s daily life with diabetes? On the other hand, what do you hope they don’t see?

Most of the time I’m just nervous about being judged by my medical team. Because for them I may just be the numbers on a test results sheet, but they don’t know what’s really happening to me. My doctor doesn’t know that I struggle with two jobs, a hectic schedule, and that most days I just want to give up and forget about everything. That affects the way I manage my chronic conditions.

Sometimes I’m too tired to remember to take my medication on time, or I’m running late so I skip breakfast which is something I shouldn’t do. Things like that change the rules of the game, and it’s so easy for health care providers to just pretend we follow instructions and work like machines.

I feel like I want my doctor not only to listen to how my body is doing, but to really listen and give me advice when I feel so messed up, being in control is the last thing I can do.